Resources & Support Groups

Caring for a preemie who has NEC can be difficult. It is important that you know you are not alone.  There are resources available to assist you. Below are resources that may offer support and knowledge.


  • Peekaboo ICU App
    An app designed for parents of preemies during their NICU experience.

Organizations that offer education, support and resources about NEC:

  • NEC Society
    A non-profit organization dedicated to protecting premature infants from necrotizing enterocolitis and reducing the occurrence. They provide up-to-date information on NEC-related issues and offer many resources for those impacted by NEC.
  • The Morgan Learly Vaughan Fund
    ​A NEC-specific, non-profit organization that is focused on increasing research and public awareness.
  • Team Grayson
    Raise awareness and find cures for diseases that impact newborns and preemies including NEC.

Organizations that offer advice to assist parents and families of premature infants:

  • Preemie Parent Alliance - Newborn Hope
    An organization committed to the support of preemie parents. This site provides resources and support programs to parents of preemies, babies born with special health-care needs and those who have experienced loss due to these or other complications.
  • Hand to Hold
    A Parent Organization for Fragile Babies
  • Graham's Foundation
    Supporting preemies through advocation and research.
  • Peekaboo ICU
    Information designed for clinicians and for parents of preemies during the NICU experience.

Online Support Groups